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Fast Facts for Patients: Waldenström Macroglobulinemia
Waldenström macroglobulinemia (shortened to WM) is a rare blood cancer. WM usually progresses slowly; some people do not show symptoms for several years after diagnosis. A person who does not have symptoms usually does not need treatment, but active monitoring is essential so that treatment can be started as soon as it is needed. Although there is no cure for WM, different treatment options can keep the disease under control for many years in a lot of people. Eventually, the treatments tend to lose their effect. New therapies are being tested in clinical trials across the world, with promising results.Table of Contents:•What is Waldenström macroglobulinemia? How will WM affect me? Who is in my care team? What tests will I need to have? Common feelings when diagnosed•Helping yourself•Active monitoring•Starting treatment•Types of treatment•What are supportive treatments? How do I know if treatment has worked? Follow-up after treatment•When WM comes back•Research and new treatments•Understanding WM
- Cover
- Contents
- What is Waldenström macroglobulinemia?
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How will WM affect me?
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Effects of having fewer healthy blood cells
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B symptoms
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Swellings and lumps
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Some of the possible effects of WM
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Anti-MAG neuropathy
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Hyperviscosity syndrome
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Bing–Neel syndrome
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Cold agglutinin disease
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Cryoglobulinemia
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Amyloidosis
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Transformation to aggressive non-Hodgkin lymphoma
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- Who is in my care team?
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What tests will I need to have?
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Blood tests
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Bone marrow biopsy
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Scans
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Common feelings when diagnosed
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Connecting with others
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Helping yourself
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Get a clear picture
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Minimize the risk of infections
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Maintain a good all-round diet
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Keep up the exercise
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Rest when you need to
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Active monitoring
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Starting treatment
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Which treatment?
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Types of treatment
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Chemotherapy
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Monoclonal antibodies
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Combination treatment
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Proteasome inhibitors
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Bruton tyrosine kinase inhibitors
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BCL-2 inhibitors
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Checkpoint inhibitors
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Cell therapies
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What are supportive treatments?
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Iron replacement
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Blood transfusions
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Growth factors
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Plasmapheresis or plasma exchange
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Prevention of infection
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Vaccinations
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Intravenous immunoglobulin
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How do I know if treatment has worked?
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- Follow-up after treatment
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When WM comes back
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High-grade transformation
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Active monitoring
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Research and new treatments
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Clinical trials
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Studying genetic changes
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CAR T-cell therapy
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Registry data
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Understanding WM
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Normal blood cell production
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How does WM develop?
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What causes WM?
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Genetic mutations
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- Glossary and abbreviations
- Copyright
- 出版地 : 德國
- 語言 : 德文
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