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COVID-19 and Co-production in Health and Social Care Research, Policy, and Practice
EPDF and EPUB available Open Access under CC-BY-NC-ND licence. Groups most severely affected by COVID-19 have tended to be those marginalised before the pandemic and are now being largely ignored in developing responses to it. This two-volume set of Rapid Responses explores the urgent need to put co-production and participatory approaches at the heart of responses to the pandemic and demonstrates how policymakers, health and social care practitioners, patients, service users, carers and public contributors can make this happen. The second volume focuses on methods and means of co-producing during a pandemic. It explores a variety of case studies from across the global North and South and addresses the practical considerations of co-producing knowledge both now - at a distance - and in the future when the pandemic is over.
- Cover
- Title Page
- Copyright Page
- Contents
- Editorial statement
- Copyright Page
- Introduction
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1 Co-​production methods and working together at a distance: Introduction to Volume 2
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The COVID-​19 pandemic, inequalities, and exclusion
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What we mean by co-​production
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- Part III Working together at a distance: guidance and examples
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2 Conversations for change during COVID-​19: Community Voices North West London
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Introduction
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Part 1: the personal impact of inequalities and COVID-​19 in our communities
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Part 2: our process: evolving collaborative approaches to tackle inequalities
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Part 3: the impact of Community Voices North West London
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Facilitating individual learning and support
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Facilitating collective action that garnered national attention
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Conclusion
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What needs to be done
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Disclaimer
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3 My Rhodes has no nose: COVID-​19 and the two cities of Cape Town
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What needs to be done
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4 Insider-​outsider positions during co-​production: Reflections from the Candomblé terreiros in Brazil
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COVID-​19 impact on Candomblé terreiros
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The co-​production of actions and outputs –​ the different steps
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Formulating context bespoke public health guidance
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Conclusion
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What needs to be done
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5 Ambitious about co-​production: Adapting a participation programme during the pandemic to meet the needs of autistic young people
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Responding to young people’s diverse needs
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Controlling the narrative and educating others
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Nothing about us, without us: centring lived experience in research
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What needs to be done
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Notes
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6 A co-​produced response to COVID-​19: Impact on women and girls with disabilities in low-​ and middle-​income countries
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Background
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Impact of COVID-​19 on women and girls with disabilities
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Inclusion of young people with disabilities to positively impact their communities during COVID-​19: snapshot of what has been done
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Testimony of Patricia
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Faith’s story of life
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What needs to be done
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7 #WirVsVirus: Communities co-​producing new solutions to meet COVID-​19 challenges through a hackathon in Germany
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Introduction
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A conceptual framework for digital co-​production
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The German hackathon #WirVsVirus as a case study of digital co-​production from the perspective of the OpenFoodBank project
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Co-​commissioning
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Co-​design
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Co-​delivery
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Co-​assessment
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Outlook
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What needs to be done
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8 Locked in or locked out: Redistributing power to d/​Deaf and Disabled people when using remote technologies
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Introduction
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Using the telephone
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Using video call technology
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Using video meeting technology
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Redistributing power
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What needs to be done
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9 Bridging Gaps: How we’ve managed digital exclusion during COVID-​19 to improve access to healthcare for women who have experienced trauma
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Introduction
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About the Bridging Gaps project
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Managing digital exclusion during COVID-​19
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What needs to be done
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Acknowledgements
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Funding statement and disclaimer
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10 COVID co-​design does not *HAVE* to be digital!: Why ‘which platform should we use?’ should not be your first question
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Context
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Introduction
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Typologies
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Same time and different space
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Online workshops using videoconferencing and digital collaboration software
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Online workshops using videoconferencing and physical materials
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Different time and different space
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Distributed workshops using ‘workshop in a box’ with a pass-​the-​parcel approach for collaboration
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Distributed workbooks or activities sent via post, with digital interface made available independently
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Assemblages
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Ongoing explorations: barriers
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Conclusion
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What needs to be done
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11 Co-​producing virtual co-​production: Adapting to change
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Introduction
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We are human
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We are inclusive
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We are transparent
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We are challenging
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What needs to be done
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12 Co-​production and COVID-​19: Digital diaries as a platform for participating in COVID-​19 research
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Introduction
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Community engagement and social sciences in pandemic settings and COVID-​19
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The COVID-​19 ‘SPEAR’ study
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Digital diaries in the SPEAR study
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Reflections on using digital diaries
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Conclusions and recommendations
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What needs to be done
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Acknowledgements
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13 Going remote: Using technology to co-​produce homeless health research
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Introduction
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COVID-​19 and the need for co-​produced research
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Remote delivery of co-​produced research: our studies
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Conclusion
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What needs to be done
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14 ‘A place where we could listen to each other and be heard’: Enabling remote participation spaces for research and co-​production among disabled people with energy impairment beyond COVID-​19
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Introduction
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About ELCI and being housebound
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Methodology –​ an extended online research forum
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Ensuring anonymity and confidentiality
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Adjusting for fluctuation and cognitive fatigue
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Unbiased responses
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The research process
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Conclusions and recommendations
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What needs to be done
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15 Reflections on Punjabi communities, COVID-​19, and mental health
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Context
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What we observed and what we wanted to do differently
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Attempting to address gaps
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Funding
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Our approach
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Technology
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Findings
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Conclusion
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What needs to be done
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16 International perspectives on the impact of COVID-​19 on community engagement of young people for involvement in mental health research
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Introduction
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NeurOX YPAG: opportunities and challenges in transitioning co-​production with young people to a digital approach
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YPAG personal reflection: Peter Lewis, NeurOX YPAG member (age 16 years)
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EMDIYA: formation of a virtual YPAG across five African countries
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YPAG personal reflection: Kudzanayi Kanyere EMDIYA YPAG member
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Reflections of online engagement
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Conclusion
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What needs to be done
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17 From Utopia Now to Dystopia Now: Co-​producing knowledge about young people’s hopes and fears for the future
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What needs to be done
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Acknowledgements
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- Afterword
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18 Co-​producing during a pandemic and beyond: An afterword for Volume 2
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Co-​production now: celebrating and critiquing this collection
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Co-​production in the future: this collection and the post-​pandemic landscape
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